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I have been doing health research since the early 1970's

To answer that question, it helps to have a bit of background on this infection
weezie
i have just been diagnosed with gs after complaining of being tired and thirsty. obv tests were done for diabetes which then led to gs being diagnosed. does anyone else suffer from extreme constant thirst?

WhosGilbert
I too get amazingly thirsty, but usually at night (can't sleep without a glass of water beside me!) I've been tested for diabetes too, but it's not that. I think it happens more if I haven't been watching what I eat and have had something sugary or fatty.

Pinawa
water goes with me everywhere and I can't sleep without it by my bedside! makes sense it's the liver trying to get help detoxing...

Penguins4ever
I too, am always thirsty. I must keep myself hydrated at all times, and it moves through me VERY rapidly. I have had a bottle of water for years next to my bed

SumariMike
How much water do you drink daily? How many sodas and how much coffee or caffeinated drinks? It's my experience that most Americans are thirsty because they drink very little actual water and drink huge amounts of Coke, coffee, tea -- all of which are diuretics. If you are not drinking upwards of 60+ oz of water and matching what you drink in Coke & coffee with an equal amount of non-caffeinated liquid, you are going to be dehydrated and thirsty. Sugar is a stimulant as well, and actives body processes to eliminate water.

Carol1503
I also have a bottle of water by the bed, some nights I wake with a very dry mouth.

Viva
I have had an unusually high level of thirst for the past few months now… One of the downsides to the 'thirst' issue is that I am now no longer able to know just when I am actually truly thirsty and not.. as I always have the same sensations ("water... water") .. it's annoying

My first book was entitled "Complete Guide to Minerals"

30/10/2017 · From why am I always tired to Is Shingles contagious..
Sam Greason
I am 43 years old and recently developed an alcohol sensitivity. One drink and I get a bad headache that lasts 24 hours.

Williecanuck
My symptoms include alcohol sensitivity. 2 beers and I'm half baked. Sometimes I can barely handle 1. I used to be able to drink alt more. I find Milk Thistle helps before and after. It seems to cut down the nausea the next morning… If I have 4-5 glasses of red wine over 4 hours, I turn yellowish green. My Biliverdun count jumps along with the Bilirubin. Tired and extremely sick at this point.

LucyUK
I can only manage 1-2 glasses of wine now. I used to be able to drink alot more. The thing is I forget how it affects me I can be enjoying a lovely bottle of wine with friend over a meal no problem - then all of a sudden I feel really ill.

Azvessey
This might just apply to me but I can drink any quantity of dry alcohol with or after a meal of low-carb protein and low-carb veg. If I try to combine sugars or high glycemic foods with the alcohol, I get bloated, nauseous, very drunk, and turn yellow.

 

Tina Brown: My story- Churg-Strauss/EGPA – sunnytb


Things with sugar or lots of carbs cause this and hypoglycemia as well.

Froggigirl
high fat foods give me stomach aches, a constant diet of small amounts of fatty foods tend to result in a toxic feeling and fatigue
2. What has been the best remedy you have found to work to lower your symptoms? basically diet. i don't eat chocolate (big no) and stay away from take-out. if i don't eat properly i get fatigued, and i also take a multivitamin which helps.

Kdhsgf
1. What foods have you noticed affect the way you feel and in what way? Usually fatty foods... but depends... somthing that may not have a high level of fat may contain something that will set me off and get nausea...
2. What has been the best remedy you have found to work to lower your symptoms? Drinking wheatgrass juice...

Ybalci2001
Fatty foods make me SO jaundice and nauseous, but carbs make me feel fatigued.
2. What has been the best remedy you have found to work to lower your symptoms? Dandelion and nettle tea are good for eczema.(Milk thistle makes me nauseaus) Broccoli,black radish,cabbage,cauliflower make me feel good.

Mike260980
1. What foods have you noticed affect the way you feel and in what way? fatty foods shoots through system amd stomach cramps (ouch) can get really bad

Coyote
Not sure if BEFORE GS, but allergic to peanuts, stomach cannot handle white onion.
1. What foods have you noticed affect the way you feel and in what way? -- SUGAR (BRAIN FOG, MOODS), PROCESSED FOODS SUCH AS WHITE FLOUR (NAUSEA, STOMACH, MOODS)
2. What has been the best remedy you have found to work to lower your symptoms? -- MILK THISTLE, AND ECHINEACEA KEEPS MY IMMUNSYSTEM UP

Kate Lerwill
Fruit upset my stomach and caused my mouth/throat/tongue to swell slightly!
1. What foods have you noticed affect the way you feel and in what way? Tea, coffee and alcohol
2. What has been the best remedy you have found to work to lower your symptoms? I began taking Aloe Vera to help the stomach pain which has worked well for that. But I do not know at present whether the pain is caused by the GS or something else. Haven't yet found a help for the fatigue, wish I would hurry up and figure it out.

Gewitterstochter
Before Gilberts were you intolerant to any foods or allergic to anything? (If yes please state) always had food allergies - weird ones. Jasmine, rosemary, basil. Probably liver can't handle them!
1. What foods have you noticed affect the way you feel and in what way?
Because of the asthma and MVP I actually need caffeine. I'd be lost without it. Also, broccoli, onions, garlic, mushrooms, and lots of meat and eggs. I can't go without meat, I literally fail to thrive.
2. What has been the best remedy you have found to work to lower your symptoms?
Still working on this. About to try phenobarb. Currently trying betaine, cysteine + vitamin C (1:3 rato cys:C), taurine, and hi protein diet with lots of oily fish and red meat. Am finding fatigue is less. Hope depression related to it will also be less.

Kimmy Kims
12. Before Gilberts were you intolerant to any foods or allergic to anything? (If yes please state) When I was a kid.. no. Around the suspected time of onset - penicillin, naprosyn, codeine, morphine, dust, pollin, cats, grass, some dogs, carrots, non-whole grain products, sugar substitutes
1. What foods have you noticed affect the way you feel and in what way? non-whole grains, sugars and sugar substitutes - get tired, anxiety and bad depression.. clears up about 24 hours after it hits.
2. What has been the best remedy you have found to work to lower your symptoms? exercise, low-carb/no sugar diet, royal jelly (for energy)


ajay
Although I love to sail and never get sick. Put me on any diesel type boat and I will immediately get seasick (really bad). I used to think that it was an equilibrium thing, but having sailed for years I never experienced it once. Put me on a fishing boat, ferry or whatever and almost as soon as I smell that fuel...I literally get sick in my stomach, start sweating and turning purple.

SumariMike
I have been on many boats in my life from small fishing boats, canoes, whatever to large cruiseships. The only time I ever got naseous was on a small diesel powered tender on the way to an island in the Bahamas. The boat was rocking heavily and the engine room was just under where we were sitting. It was a 30 minute trip and by about 10 minutes, I was thinking I would puke.

Naomi block
I never would have connected this up, but yes I hate the smell of diesel, just the scent of it makes me turn green. I used to do alot of long ferry crossings and couldn't go outside if the wind was in the wrong direction. But it could just be that I am highly sensitive to smells and nothing to do with GS, smoke, perfume, fried food etc can't deal with them at all.


22/05/2014 · A lil' about me..

Back in January, I started to not feel well. I was exhausted all the time, was suffering from anxiety and lost weight… I continued to feel exhausted, and had the fever for 2 1/2 months. I felt anxious and was getting extremely stressed. At times I'd feel nauceous, unmotivated, and I was starting to get depressed. Usually the party girl, I was not going out at all, not organizing parties, and I was losing contact with friends. My boyfriend said he couldn't even remember what I was like when he first met me (about 4 months before all this started). I would say things to my boyfriend like, "I feel like I have bile running through my blood - I know that's impossible, but that's how i feel," or "I think I have Seasonal Affective Disorder, I feel better when the sun's out!" My tolerance for alcohol went down. One time I drank one glass of wine while out with friends. I felt like I had poisoned myself - I coudl feel it running through my body, and I felt awful. Other times, I was ok to drink - one night I had about 2 1/2 beers - I got completely drunk, and the next day I was so hungover, I felt like I had gone on a bender... I do get fatigued very easily, and sometimes I just have weird sensations - like it feels like my brain is cold. Strange. I still feel anxious sometimes, but now that I've learned that it's not becuase I'm crazy, it's because of something going on inside my body, I'm able to deal with it better. I'm also noticing that I feel waves of anxiety/tiredness/weakness after meals.